ALS News Today ForumsDoes ALS Awareness month matter to you? – ALS News Today Forums https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/feed/ Fri, 24 May 2024 04:31:20 -0500 http://bbpress.org/?v=2.5.14-6684 en-US https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-24114 <![CDATA[Does ALS Awareness month matter to you?]]> https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-24114 Fri, 23 Jun 2023 14:32:15 +0000 Amanda If you were diagnosed in the last year, I’m curious what you thought about ALS awareness month in May. 

Did you learn anything new about ALS? Do you think it makes a difference?  Did it evoke any emotions? Was it helpful or stressful? ]]> https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-24133 <![CDATA[Reply To: Does ALS Awareness month matter to you?]]> https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-24133 Tue, 27 Jun 2023 17:23:30 +0000 Dagmar I wasn’t diagnosed in the last year (13 yrs ago) so I don’t really qualify for your question 😉 😉 But for me, I’m always a little sad when ALS awareness month is over – – I wish activities and awareness at this level would happen all year long.

]]> https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-25515 <![CDATA[Reply To: Does ALS Awareness month matter to you?]]> https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-25515 Thu, 16 May 2024 14:01:51 +0000 Lis ALS has changed my life completely I haven’t been able to take any meds for slowing progression

I was diagnosed last May. My balance and walking hav been affected. And I fight fatigue daily.

If You’d Like to get in touch my name is Lis and my email is irisbloom@gmail.com

]]> https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-25516 <![CDATA[Reply To: Does ALS Awareness month matter to you?]]> https://alsnewstoday.com/forums/forums/topic/does-als-awareness-month-matter-to-you/#post-25516 Thu, 16 May 2024 16:46:17 +0000 Dagmar Hello Lis, yes – – I agree, ALS changes our lives completely. Have you participated in any of the annual ALS Awareness events? If so, which ones and have they helped you to better accept having the condition? I remember being newly diagnosed and for me, the events were confusing and I had to wait a while before feeling comfortable enough to join in.

]]>